We had a transition meeting for Gareth this morning. I was reminded once again how much I have to learn about this whole disabled child spiel.
I guess I don't really trust myself when it comes to my kids and what's good for them. When the early childhood development specialist asked me for information regarding Gareth's needs, I was tongue-tied. My first thought was, "I don't know! That's why I'm here!"
I know a lot about Gareth's personality, his likes and dislikes etc. And I know that he has limitations (duh). But I don't know what to do to foster growth in those areas. I admit that I rely heavily on the information I get from his therapists and vision teacher. They're so much more familiar with things to look out for, tendencies, red flags, etc. than I am. For example, before we had Gareth diagnosed, he was already rocking at six months. Without his vision teacher, I wouldn't have known that was a problem (or at least not as soon as I did. I just thought it was one of his little idiosyncrasies).
Anyway, I guess what I'm saying is that I still feel like I'm floundering sometimes. I still wonder if I'll ever get good enough at this parenting a disabled child thing to be ahead of the game and have suggestions for his development. I appreciate that Gareth's doctors and coordinators trust me so much. But I'd be lost without them. Seriously, folks, I consider you guys to be the experts. Would you hold my hand, please (believe it or not, I'm a relatively independent human otherwise ;)?
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3 comments:
Lessie-you are GREAT! We only learn through experience, and you are learning each new meeting! It can be so confusing sometimes! I am glad you share this on here. It is good to know we aren't alone!
i don't get how you should know what he needs *unless* you're told by someone. i would look at it this way: that you hear what they think he needs and then form an opinion on whether that fits with your experience and life with him, kwim? you're in charge and calling the ultimate shots, but we all need some input for areas we've not experienced before.
give yourself a break Lessie!!
and long time no read, but happy to see you as always. kiss kiss.
shukr
xx
Amber, I didn't even know anyone had commented on this post. I would have responded months ago. I post this here because that's what I think blogs are for. They're for fostering community and sharing experiences. That's why I was so excited that we were starting this.
Shukr! I'm so glad to hear from you! How is your little girl? I hope you see this. I'll visit your blog again soon to see what's going on. Thank you for your kind comments :)
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